Bookcover of Frankenstein's Grave: Experimental Treatments at the End of Life
Booktitle:

Frankenstein's Grave: Experimental Treatments at the End of Life

LAP LAMBERT Academic Publishing (2015-02-17 )

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ISBN-13:

978-3-659-35890-6

ISBN-10:
3659358908
EAN:
9783659358906
Book language:
English
Blurb/Shorttext:
U.S. federal research funding triggers regulations to protect human subjects known as the Common Rule, a collaborative government effort that spans seventeen federal agencies. The Department of Health and Human Services has been in the process of comprehensively reevaluating the Common Rule, which designates specific groups as “vulnerable populations”--pregnant women, fetuses, children, prisoners, and those with serious cognitive challenges--and imposes heightened protections of them. Given the vulnerabilities of those who confront end-of-life decisionmaking, should the regulatory standard be raised to more effectively protect the terminally ill from additional suffering and the loss of quality time with family and friends? Alternatively, should the regulations be relaxed to promote access to experimental treatment alternatives? What importance should be placed on the overall advancement of biopharmaceutical research and development in addressing these human health issues? This Article proposes modifying the Common Rule to enhance human subject protection of the terminally ill, which the U.S. standard of care generally recognizes as a diagnosis of life expectancy of six months.
Publishing house:
LAP LAMBERT Academic Publishing
Website:
https://www.lap-publishing.com/
By (author) :
Michael Malinowski
Number of pages:
60
Published on:
2015-02-17
Stock:
Available
Category:
Medicine
Price:
28.90 €
Keywords:
Clinical Research, end of life, informed consent, Palliative Care, experimental care, genetics, boimedical

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